Last night was great, she didn’t ask once for pain meds. So this morning they stopped the epidural and we are trying to get her only on oral medication so that we can go home. She agreed to take the “blue” oral med. Since they gave her a sample, and the “blue” is basically the flavoring. So they mix that will valium, which looked bright blue, she took that no problem. The narcotic looked a little more purple, but she took it without much negotiating… finally.
They removed her epidural, which was quite the event. Olivia has little blonde hairs everywhere, and they had to rip the tape off all along her back, which she really sobbed about. She also sobbed as they removed the IV in her hand, for the same reasons.
She was thrilled to get out and about and go to the play room. They offered a bath and she was very happy about that. Then I realized that she thought that a “bath” meant getting naked. Which means the cast would come off. She was disappointed to learn that the bath was on a special bed and the cast stayed on. She loves her hair being washed, but it has to be done really gentle as her head is SUPER sensitive.
Though once there she was frustrated with the fact she really couldn’t do much. She wanted to ride the bikes and play with the games, but with her cast most things were impossible.
The oral medicines are somewhat of a challenge. She just doesn’t understand they control the pain, she will cry from the pain, yet refuse any medicine. I am not sure that she completely understands that it takes the pain away. Since you take the meds and it takes 15-45 minutes for it to really kick in.
It looks like we are all on track to go home tomorrow. I am excited to go home and spend time with our other children and catch up on all the projects that we have in the making. But I LOVE the Shriners staff, they are so sweet and helpful. I have never experienced medical care like I have at Shriners. Everything is about your child and what is the best plan and care for them. Since insurance is never an issue and doctors don’t have to worry about HMO’s or administration breathing down their neck.
Shiners is 100% supported by donations. So please consider helping this VERY WORTHY cause. You can mail small gifts or send cash. I can assure you that it is money that is well spent. They are great about giving the children things to do, and special treats so that there time there is as positive as possible.
Here is a link to learn more… http://www.shrinershq.org
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